I want to start by saying Thank You to the Lord for all He has done for James and our family. After nine years of treating James' tumor, we have a wonderful little boy. In looking around in the "brain tumor world," it doesn't take long to realize that most brain tumor patients are not here nine years after diagnosis, let alone with the health that James has. Although he has significant vision cuts caused by his tumor, most optic glioma patients after nine years are blind. James struggles to read, but can still read nonetheless. Many optic glioma patients have problems with hormones and growth because the tumor is so close to the pituitary gland. James does not have any of this. At 11 months old, James stopped eating altogether (and I mean all). This was caused by the tumor. He dropped to only 11 pounds at 1 1/2 years old. Yet, today, James weighed in at 79 pounds and I have a hard time keeping him in clothes. Growing is certainly not a problem for him - and neither is eating.
As mentioned, we have been blessed with insurance coverage for James up until this time. This doesn't leave us with no bills, but it certainly could have been worse. Most of all, we wouldn't have been able to get him started on the treatment without the coverage. But, as also mentioned, James coverage is running out - having reached his lifetime max of a million dollars (after already having used about $400,000.00 at a previous job).
As you can see, God has been so good to us - thus our theme. I know that He will continue to care for James and provide. It is our prayer to keep James on the IV antineoplastons as long as possible - as this offers the best effect on the tumor. When he has reached the maximum benefit from the IV treatment, he will be switched to the pill form - used more as a maintenance treatment for a few more years. Then, prayerfully, the day will come that James will no longer need anymore treatment. He will be tumor-free and will go on to serve the Lord with his life. A life that God gave once, at birth - twice, at salvation - and a third time, when He cured his tumor.
Thank you, Lord, for all you have done!!!!!
Monday, August 20, 2007
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