Prayers Needed!!

First, Johannah is really not doing well. She has not bounced back very well from the seizure she had in Minnesota. This morning, she had another grand mal seizure and then continued to have seizure activity (that's the best way I know how to explain it - it's not a grand mal seizure, but she certainly is not "with us") until noon. It is now 8:00 p.m. and she is starting again. The doctor is going to consider increasing her Frisium. But, it appears that this medication - as the many others have - is losing its effect. I don't feel there is much hope with other medications. I am holding out for some success on the diet. PLEASE pray for her safety, that there will not be permanent damage from the seizures, and that the doctors can gain some sort of control.

Then, James has another MRI on Saturday. We are hopeful. Of course, he is doing well and has tolerated the increased dose of medicine wonderfully. He struggles with occasional high sodium (opposite of what he's dealt with in the past) and low potassium (from the increased fluids), but otherwise is doing wonderfully.

Finally, both Johannah and James are really struggling in school. In fact, it doesn't appear at this point that either one will pass this year. James has been working very hard, but he cannot pass unless he passes reading - which he is not. Many have reminded me that this is not the most important thing right now, and that is true. But, I do still feel bad for them. I know that it will be hard for them when the reality hits that they will not go on with their class. But, in the end, I'm sure they will do fine.

Thank you so much for your prayers.

You should see the other guy

Last weekend, I took the kids to Minnesota to go skiing (actually, James and Hannah were going to be tubing). I usually set the alarm to get up early and give Johannah her medicine - hoping to get it in her and working before she wakes or she will have a seizure. It worked on Sunday morning. But, Monday I went to the bathroom to get the water for her medicine and found her on the floor. I don't know when she got up or when she had the seizure. Unfortunately, it was a very small bathroom - so it would have been impossible to have a seizure without getting hurt - which she did. In fact, the bathroom looked like a crime scene when I found her. I took her picture. It doesn't look so bad - I had cleaned her up and you can't really tell that her nose is actually quite swollen and her upper lip is cut and swollen.



She has not had anymore seizures this week, but seems to be moving quite slowly - just not bouncing back so quickly. She could really use prayers as she tries to get back into school and get her make-up work done.

Here are some pictures of James tubing, the big boys skiing, and then James crashed on a couch in the lodge before the day was over.







We did all have a good time - even Johannah who enjoyed spending the day with Grandma and watching movies.